ALSP Community &
Resources
ALSP is a rare disease,
but you are not alone.
Connect with the ALSP community – patients, families, caregivers, researchers and patient advocacy organizations – for support, education and to share your story.
ALSP, Leukodystrophy and Rare Disease Patient Organizations
Upcoming Community Engagement Events
February 2024 GLIA CTN Scientific Meeting and Advocacy Workshop | February 25th -28th
Americas Committee for Treatment and Research in Multiple Sclerosis (ACTRIMS)| February 27th - March 1st
For more information on ALSP, click to open a Guide for Understanding ALSP.
If you are a caregiver or family member and are looking for ways to support your loved ones with ALSP and build a care team, click to open an ALSP Guide for Caregivers and Family Members.
Stay Informed
Still have questions? We know that living with ALSP requires support and access to up-to-date information. Contact us to learn more about the latest research, tools, resources, and events.